Patient Voice · Episode
Jurate Lasiene — Rare Disease, Patient Advocacy & a One-Way Ticket to America
In this episode of the Pharma Prescribed Podcast, host Adam Walker sits down with Jurate Lasiene, a PhD in neurobiology and specialized biotech consultant, to explore the human side of rare disease clinical operations. Jurate shares her journey from a newly independent Lithuania to Tokyo and the United States, illustrating how a global perspective on "potholes" and culture has shaped her approach to scientific leadership. The conversation moves beyond data and protocols to discuss the emotional and professional draws of rare disease research, where patients often meet others with their condition for the very first time during a clinical trial. Listeners will gain an insider’s view into the operational challenges small biotechs face, the critical role of patient advocacy groups, and the future impact of AI on reducing the costs and timeframes of drug development. Jurate also opens up about the personal sacrifices of an international career and why she prioritizes "brutal honesty" in her consulting practice. This episode provides a grounded look at how passion and pragmatism coexist in an industry where 94% of ventures fail, but the 5% that succeed offer life-changing hope to patients who previously had none.
Chapters
Approximate · derived from transcript
- 0:00Podcast Introduction
- 2:05Meet Yura Ashian
- 4:11Jurate\'s Mission in Rare Disease Clinical Trials
- 6:17From Literature to Neurobiology
- 8:22Mission in Rare Disease
- 10:28Why Rare Disease Chose Her
- 12:34The Emotional Draw of Rare Diseases
- 14:40What Makes Rare Unique
- 16:45Patient Advocacy Matters
- 18:51Challenges and Opportunities in Rare Disease Consulting
- 20:57Sacrifices of a Global Life
- 23:02Languages and Life in Tokyo
- 25:08Future of Rare Disease and AI
- 27:14The Impact of AI and Technology in Clinical Research
- 29:20Digital Twins Reality Check
- 31:25Advice for Next Generation
- 33:31Advice for the Next Generation of Life Scientists
- 35:37Industry, whatever particular area they decide, maybe
- 37:42Early Clinical Ops Planning
- 39:48And is there any particular area that you\'d like to just. Talk further about that we haven\'t touched on
- 41:54Quick Fire Round: Personal Insights and Advice
- 44:00Final Thoughts and Contact Information
Key insights
The 95% Gap in Rare Disease Treatment Awareness
With 95% of rare diseases currently lacking approved treatments, research in this niche is driven by passionate innovators who often face high failure rates but gain deep motivation from the gratitude and personal connections found within patient communities.
Patient Advocacy as a Strategic Trial Asset
Engaging with groups shouldn't be for appearances; their insights can help companies design trials that are more patient-centric and cost-effective by reflecting the day-to-day realities of living with a rare condition.
Technology as a Catalyst for Reducing Clinical Costs
The future of orphan drug development relies on leveraging technology and AI to reduce the timeframe and immense costs of research, ensuring a viable return on investment for companies tackling small patient populations.
The Importance of Radical Transparency in Consulting
In a niche industry, success depends on a personal brand built on transparency and "brutal honesty" rather than just technical skill, as people prioritize human connections and integrity when selecting project partners.
Global Experience Shifting Scientific Perspective
Living and working across diverse cultures—from the 'big thinking' of the US to the meticulous structure of Japan—provides a global perspective that is essential for navigating the cultural differences in modern medicine and decision-making.
Full transcript
Edited for readability. Speaker labels preserved. Click to collapse.Click to expand.
Full transcript
Edited for readability. Speaker labels preserved. Click to collapse.Click to expand.
Podcast Introduction
Adam Walker:I\'m Adam Walker, a biometrics consultant, and this is the Pharma Prescribed Podcast where leaders, innovators, and hidden voices in healthcare open up, no sound bites, no spin, just raw insights, one prescription at a time. In an industry driven by data protocols and pressure, we rarely pause to ask the human question.
Adam Walker:What drives us, what breaks us, and what truths live behind the titles we wear?
Meet Yura Ashian
Adam Walker:Ashian is a clinical research leader and biotech consultant specializing in rare disease clinical operations for small biopharma and biotech companies with over 20 years bridging academia and industry. She\'s become the operational compass for biotech\'s, navigating early clinical trials.
Adam Walker:Her journey began more than two decades ago in a newly independent Lithuania where she stood at an airport with \$400 in her pocket and a one-way ticket to America that calculated risk. Leaving everything known for everything possible became the template for her career courage, mixed with ruthless pragmatism.
Adam Walker:She holds a PhD in neurobiology, which shapes how she approaches both science and leadership. A career spans both CRO and sponsor side leadership, and she\'s lived and worked across three continents. That global experience gives her a strong understanding of cultural difference in medicine, research, communication, and decision making.
Jurate\'s Mission in Rare Disease Clinical Trials
Adam Walker:Yura for our audience , who aren\'t familiar with you, who are you and what is the mission you\'re on?
Jurate Lasiene:Thank you so much for having me. Who am I? It\'s can be a very philosophical question, right? I am many things, like many other people. I\'m a mother I\'m a scientist, I\'m a professional. And the mission I\'m on it\'s a funny word, mission but.
From Literature to Neurobiology
Jurate Lasiene:I\'ve had very many different starts in my life and in my career, and actually my husband calls me a lead bloomer, which I take offense with, but it\'s because I couldn\'t decide exactly what I wanted to do for a while. Because I started in literature. My bachelor\'s is actually English lit. And I loved creative writing, but then I came across two books that shook me to the core, and that\'s where I think I\'m still on that path.
Jurate Lasiene:One of the. The books was by Alexander Luria. It was about brain damage and how he worked with world War II Soldiers, I believe it\'s World War ii. And the other one was Oliver Sack, so that\'s where I started to become really curious about neurobiology, neuroscience, how our brain works.
Jurate Lasiene:And I never stopped for me. And after I got my PhD I was already starting to understand that just understanding or trying to figure out how the brain works wasn\'t enough for me. I was really craving to see how biology. Actually works in clinic what patients are dealing with day to day.
Jurate Lasiene:So I think that\'s where after doing my postdoc, which was out of necessity really, \'cause I didn\'t really know what to do. So after doing my postdoc in Japan that\'s where I stumbled on a, idea for career. That could be in clinical trials that would bridge very interestingly my background and also my interest,
Jurate Lasiene:so that\'s where I started.
Mission in Rare Disease
Jurate Lasiene:And the mission I\'m on right now is helping those little companies that are also starting out in their clinical journey, just like I started many years ago. Or bringing something unique, something that doesn\'t exist to rare disease patients, families, young, old, they\'ve been waiting to get medicine that doesn\'t exist.
Jurate Lasiene:Or it\'s not even in clinical trials. Only 5% of rare diseases have at least one drug that is. To them. So there\'s 95% of rare diseases that they do not have any drugs. So I hope that I can contribute to increasing that percentage. That\'s, the ultimate mission,
Adam Walker:thank you, YRA.
Adam Walker:That\'s a wonderful mission to be on and I appreciate you sharing that insight.
Why Rare Disease Chose Her
Adam Walker:I\'m very curious, having also worked in rare disease myself, what drew you into that particular area? Because clearly you\'ve covered an awful lot of areas of science and clinical research in your studies. Why was it that you went down the avenue of rare disease?
The Emotional Draw of Rare Diseases
Jurate Lasiene:Probably happened by accident. Because when I was working at A CRO in the uk I covered many different diseases, different therapeutic areas as a CRA and project manager, and it\'s just the area of rare diseases just naturally drew me in because of the warmth of the physicians dealing with the patients and the patient.
Jurate Lasiene:Gratefulness and grace to wait for the drugs, for treatments. It\'s such a special tender area that is just really an emotional draw. I don\'t have anybody in my family that have particularly a certain disease, there\'s nothing like that. It\'s more just an emotional.
Jurate Lasiene:Fit that. I just feel good being in that area. And when I was running clinical trials for example, cardiovascular diseases, they\'re just like hundreds of thousands of patients. You don\'t have that personal touch. That is more motivating and more rewarding as you do in rare disease trials.
What Makes Rare Unique
Adam Walker:So for those of our audience who aren\'t familiar with the difference between rare diseases and other disease areas, would you mind just elaborating what it is that makes a rare disease so special and why those patients do identify as being different to most other patient populations?
Jurate Lasiene:As it\'s in the name it\'s quite rare.
Jurate Lasiene:And, there, there are certain classifications. Now I forget the exact numbers. Is it like 10,000 in a million or, I can\'t really remember the percentage. But FDA and EMEA they define that rare disease trials giving certain number of occurrences per population. So it\'s, they\'re typically quite rare.
Jurate Lasiene:There\'s rare diseases. And there\'s ultra rare diseases. And I worked actually in one I think that one of my experience illustrates that I worked in one disease area where the patients never met another patient with the same disease. And it was the first time. They met somebody else who had that genetic rare disease as themselves during the clinical trial.
Jurate Lasiene:So that\'s when we also started setting up the visits that the patients and their caregivers could actually talk and hang out while they wait for a blood draw, or wait for the next day for some assessment. And they would stay in the same hotel. I thought that was such an amazing opportunity for them to meet somebody like them.
Jurate Lasiene:And also for us to create that environment where, yes, we\'re testing a drug. Yes, it\'s for commercial reasons, but at the same time such a human side to it that we\'re helping them. To connect, not just simply clinically prescribe it for their disease. So I thought that\'s what\'s so special about rare diseases and you don\'t really see that happening with somebody, who has high cholesterol or something like that.
Adam Walker:That\'s a brilliant example and a wonderful insight to share.
Patient Advocacy Matters
Adam Walker:As you were describing that, I was thinking about patient advocacy as well around. These particular rare diseases because invariably, as you say, patients and their caregivers do not come across many other people, certainly not locally.
Adam Walker:Have you had much experience, and I wonder if you can speak to patient advocacy, because effectively what you\'re doing is you\'re opening up the doors to those conversations for these people, aren\'t you?
Jurate Lasiene:Yes. It\'s very important to engage with patient advocacy if they exist for that disease, because there\'s not that many, there\'s not every disease has patient advocacy or advocacy at all.
Jurate Lasiene:Some are so rare that nobody even tries to study the disease. So if a patient advocacy group exists, it\'s very important for a company to engage with them, not just for looks, but actually truly understand how you can design a clinical trial, because that will save money and the end. So there\'s a commercial reason, and it also give you an insight of what those patients are going through, especially if as a company you don\'t have.
Jurate Lasiene:A lot of experience, a practical experience of day-to-day living with such a disease.
Adam Walker:Yeah.
Challenges and Opportunities in Rare Disease Consulting
Adam Walker:Following on from that point, I\'m wondering for these individuals that are experiencing whatever conditions they\'re in, how have you expanded those opportunities more broadly as an independent person? Because. By very definition, you are working in a niche area.
Adam Walker:You\'re offering a niche service. That\'s gotta be a tough job to try and fulfill as an independent consultant, isn\'t it? How do you overcome that?
Jurate Lasiene:How do I overcome? I don\'t think I understand the question.
Adam Walker:Sorry I\'ll rephrase it. It seems like a very difficult way to try and find work in and around rare diseases.
Adam Walker:Oh. Being an independent consultant in a niche field.
Jurate Lasiene:Yeah.
Adam Walker:How do you broaden that opportunity?
Jurate Lasiene:Actually I don\'t think it\'s that hard, frankly, for a couple of reasons. First of all. There\'s more and more research in rare diseases, which is amazing because of the regulatory framework. That have changed in the past and are still changing because of advocacy of patients and companies, right?
Jurate Lasiene:So there\'s more and more research and then I think it\'s very important that you work with your companies and with your clients, speak for yourself that they suggest to their friends, because typically they\'re all friends. friends, In this is such a small niche, it seems like we know a lot of people that know people.
Jurate Lasiene:So yeah, I think it\'s very important that your work speaks for yourself. And then in AI age, that has dawn upon us. I think it\'s important to build a personal brand so that. People approach you already knowing who you are, that you\'re not a robot, that you\'re not a project manager that has just been assigned by a company to run your trial, but who you actually are and what it means to work with you as a human being.
Jurate Lasiene:There\'s so many of us that do have expertise, experience. Yes, we\'re unique in different ways, but at the same time, we do offer similar services. Yeah, but then you do, you work with people, right?
Adam Walker:Definitely people work with people. People remember the way you meet, make them feel the experiences they had when they worked with you.
Adam Walker:And it was something that we touched upon before. We hit record earlier, wasn\'t it? A podcast is an opportunity to be able to push your brand out there as much as your skills, your capabilities, what it\'s like to perhaps interact with Euro. What would people say about you that have worked with you, Yuri?
Jurate Lasiene:That I\'m brutally honest. That probably comes from the culture I\'m from extremely straightforward and brutally honest. But I care extremely deeply for their success because it\'s not just their success. It\'s not just, me earning money. It\'s truly the goal down the line. We\'re incredibly lucky to work in an industry that offers hope.
Jurate Lasiene:There\'s a lot of bad rap about big pharma, about practices, but truly when I\'ve been working in this area for so long what I see is a lot of. Incredibly passionate, and I would say even crazy people because about 94% of biotech actually fail, that they embark on this journey driven by the desire to make a world better place for those people that need it.
Jurate Lasiene:Money doesn\'t hurt, obviously, but it\'s really not that money never drove people to do what they do, to work 80 hour weeks to sacrifice their personal lives to achieve goals. So yeah, I think we\'re incredibly lucky and, I think I\'m getting away from your answer, but anyway, yeah, so I think it\'s very easy to work with me as long as we\'re all in open communication and we see what we think That\'s very important.
Sacrifices of a Global Life
Adam Walker:As I said to you before, this is about the true stories behind the life science people that present themselves on LinkedIn and on all the platforms and the companies that we represent. I\'m also curious to know. What sacrifices you have made because quite clearly, you\'ve traveled extensively, you\'ve worked extensively.
Adam Walker:I\'d love to know how that has defined you as a person as much as given you skills and capabilities that you wouldn\'t otherwise have got had you not left your hometown.
Jurate Lasiene:Yeah, so I have lived around the globe literally and the sacrifices are very small. small in comparison. The biggest sacrifice I\'d say I don\'t have the extended network of friends and family that you are so deeply rooted in that this is your world.
Jurate Lasiene:My world cannot be defined by deeply rooted relationships that run from childhood. I lost that because I was away for a long time from my home country. Yes, I do interact with some friends. Yes, family is there, but that community feeling that I\'ve known this three pothole that was paved three times over, I don\'t have that.
Jurate Lasiene:So that\'s the sacrifice I had to give. To that\'s a sacrifice. But then what I gained in return, I know how pothole looks in Japan. In uk, in the us, in Ecuador, in Mexico. I know that \'cause I\'ve been there. I\'ve driven over that pothole the same time. I\'ve connected with incredible people around the globe that shaped me in who I am.
Jurate Lasiene:You learn that you are not as special or as unique as you think you are in that deeply rooted network, which gives you so much security. But then at the same time, it doesn\'t give you enough perspective as you leave. It truly opens the whole world. Then you know that you can shape reality into how you want it to be.
Jurate Lasiene:I think that\'s a, sacrifice and what I gain.
Adam Walker:I think it\'s a brilliant answer and thank you for elaborating on that.
Languages and Life in Tokyo
Adam Walker:One other thing I also want to give you enormous credit for your language in English is phenomenal. I wonder how many languages you speak, because I know you lived in Tokyo and you\'ve mentioned several other countries where you\'ve lived, how many language.
Adam Walker:Do you comfortably speak these days?
Jurate Lasiene:I\'m fluent only in three, so I don\'t speak that many. I\'m actually not, I don\'t really like learning languages to tell you the truth.
Adam Walker:And what are those three?
Jurate Lasiene:It\'s very difficult.
Adam Walker:What are those three?
Jurate Lasiene:So it\'s Lithuanian, English and Russian.
Adam Walker:So how was it in Tokyo?
Adam Walker:Was that difficult? Was that a blast of the census? What was it like for you?
Jurate Lasiene:I felt like archeologist on Mars, it\'s a different world. It\'s a different planet. It\'s yes, they\'re human. Yes, they\'re people. Everything really works. But then you have such a strange sense of being so outside the culture and the daily living that.
Jurate Lasiene:It is almost uncomfortable, but at the same time, it\'s comforting because you disappear in the masses. That is just you, irrelevant. But then at the same time, when you are on a metro you stick out like a sore thumb. Very strange. Very strange. Again, so much personally, I had to have a lot of retrospection, especially coming from the US where everything\'s loud, fast paced, big thinking, big opportunities, big houses, and I move into a closet where the kitchen, which I love to cook. I even had a bakery business in Tokyo. My kitchen all of a sudden is the size of a table in the us. Such a huge shift, honestly. It\'s like from one extreme to another.
Adam Walker:That\'s amazing insight.
Future of Rare Disease and AI
Adam Walker:Circling back to the industry and coming back to the rare disease area in which you\'re working. I\'m just wondering, you did allude to it earlier with regards to some of the changes that you are seeing in your experience over the last 20 or so years of working in this area. What are the changes that you\'ve seen and what do you see for the future?
Adam Walker:Because. Things are moving at some pace now, aren\'t they? We think we can all agree with technology and the advent of incredible technologies. I\'d just love to know your perspective on that, if you wouldn\'t mind.
The Impact of AI and Technology in Clinical Research
Jurate Lasiene:Yeah, I think the biggest barrier for rare. Diseases research has been obviously money, funding and the payout, right?
Jurate Lasiene:It\'s just because it\'s still a business. So the money you invest, you should have a reasonable return. And clinical research is incredibly expensive. So I think yes, the regulatory framework made it easier a little bit. Less friction for smaller companies, or, for bigger companies, for rare diseases, you have orphan disease designation.
Jurate Lasiene:Which actually helps. But within technology, within ai if we could reduce the costs for clinical research. Timeframe because really time is money. That\'s exactly what\'s, the biggest impediment to get to the reward or to the market. If we could reduce time and money, then the payout naturally will be there because it\'s just, a return on your investment.
Jurate Lasiene:So if we invest less, but. Same quality. This is because some of the research or some of the time we spend could be less. That needs to be instituted by regulatory authorities so that more companies get into this area and there is more pay return on your investment.
Jurate Lasiene:Down the line is just naturally. People do care. These are incredible, interesting diseases and incredible, personal motivation, I think for many is just increasing that return on our investment or increasing the chances. I think naturally it will just then keep moving in the right direction.
Adam Walker:So what is the best way that you I our audience? Can keep up with the rapid changes that are happening? Are these things happening incrementally in your experience, or are we seeing a complete seismic shift towards something we\'ve never experienced before in a rapid period of time? In the rare disease space, I
Jurate Lasiene:don\'t think it\'s actually happening fast enough in the clinical trials in general.
Jurate Lasiene:It\'s still humans. You still need to get a drug to them. So AI will not do everything that needs to be done by far at all. We\'re still actually working with human fluids, so to speak, that has nothing to do with ai, what AI can help us and will make. Change, which actually the same for any industry or any of us.
Jurate Lasiene:It will be faster. We need less time to do automatic tasks, manual tasks and all of those things. But that\'s why this niche is so interesting because it is human bodies that we\'re dealing with, right? And AI cannot take over that. It can help us get there faster. But it will never take over. Please.
Jurate Lasiene:That\'s my thought. At first, I was incredibly worried and scared. I was like, that\'s it. There goes my job. And now that I work with Theis myself on a daily basis, I\'m like, oh no, my job\'s not going anywhere. They can\'t do what I do. But I don\'t need larger of a team anymore. To build what I need to build.
Jurate Lasiene:So that\'s where the truly big change is coming. But seismic change in a way that, oh, electricity was discovered. That\'s happening for us. But for, as I keep saying, bodily fluids, that\'s not it. It\'s still there. We\'re still humans. We\'re still biology, we\'re still a pile of bones and blood.
Adam Walker:I think that\'s a rich insight that you provide there, and that\'s probably reassuring for many of our audience.
Digital Twins Reality Check
Adam Walker:On the flip side, I do hear people talking about digital twins effectively recreating those results from bodies, from blood, from. Blood draws and comparing those. Have you had any experience of that or could you speak to that particular point?
Jurate Lasiene:I can not yet. I haven\'t seen that yet. But just translating research from mice into humans.
Jurate Lasiene:Same blood, right? It\'s still biology. It doesn\'t work that straightforward. What works in a mouse doesn\'t work in a human. And just because we mapped our genes, it doesn\'t mean we can recreate a human experience with the nurture aspect, which is too complex to model. Yet. If we can model all of that, fantastic, but when you even look at real twin research.
Jurate Lasiene:Biome, for example, microbiome, right? It can be just as different as people that are never related. I think we\'re too complex, but might be, I wouldn\'t say it\'s impossible, but I personally haven\'t had experience with that yet. It\'s still quite traditional. Research is still quite a traditional.
Jurate Lasiene:That\'s more my problem actually. It\'s too traditional. The processes are too traditional, too heavy, so I haven\'t seen the science fiction that we are thinking is happening in clinics. It\'s very limited so far.
Advice for Next Generation
Adam Walker:Again, I\'m really reassured to hear that Europe, because as I say, I want there to be .
Adam Walker:Not just a career for me to see outta my days, but also for the next generation of life. Scientists that listen to this podcast who are curious to know how they can push the door open and what those new opportunities look like in coming into this industry.
Advice for the Next Generation of Life Scientists
Adam Walker:What do you think the next generation should be?
Adam Walker:Preparing themselves for?
Jurate Lasiene:Critical thinking that they are creative without AI help.
Jurate Lasiene:Truly understanding how they can yield AI advantages for their future careers. Actually, my husband asked that \'cause he\'s an educator. My husband asked that. He\'s what would you tell your daughter? I have two daughters. I\'m like, what would tell it to study? I\'m like, actually. I don\'t really care, first of all what she studies, but if I truly had to say something, I\'m like something that actually will require human to human interaction.
Jurate Lasiene:That\'s what I think matters. But most of all, it matters how you connect things. Critical thinking, I think is more important than anything else. How do you connect things? That\'s why we\'re so incredibly amazed how AI connects different areas and comes out with insights that we can think of. So it\'s really learning how you connect.
Jurate Lasiene:That\'s where I think the next generation will have a more, a better advantage because AI will just gonna get better. Maybe robotics will get better and we\'ll start seeing fewer people needing for different jobs. But how you connect, how you interact and who you are as a personal brand, I think that\'s where we\'re going right now.
Adam Walker:A hundred percent agree with that. And funnily enough, I have similar sorts of conversations with my university age kids now as well. The thing that I say to them more than. Anything else is attention. Give people your attention. Don\'t be distracted when you are doing one thing. Just do it, but do it to the best of your abilities.
Adam Walker:Don\'t be distracted by your phone, by your notifications, whatever there are. I think those are the things that, for me, as I\'ve got older with technology in our lifetime, the phone and tablets that we now take as, just being everywhere. I think distraction is the greatest thing that we have to push against.
Adam Walker:And you will understand this more than most being an academic, ultimately that was, your bread and butter when you first came into this industry. It was academia. You can\'t do that without fully focusing and deep intentional learning. Is that fair?
Jurate Lasiene:It is fair. It is fair. You basically get consumed by one question, right?
Jurate Lasiene:All your thoughts, everything you do is taken by this one question you are working on. And when I look like at my daughter, here\'s the phone, here\'s another Snapchat, here\'s this, and then there\'s this, and then I\'m like. When are you actually putting your pants on?
Jurate Lasiene:Like you\'re still not fully dressed. Wow. How are you gonna deal with that? I don\'t know. We\'ll see.
Adam Walker:No, it\'s a ridiculous thing to think about, but actually preparing the next generation for life, working life, communicative life, and all the skills that are required in order to really succeed in whatever.
Industry, whatever particular area they decide, maybe
Jurate Lasiene:that\'s what they\'re gonna need. They\'re gonna need to deal with all the, popups all the time, and they\'re never gonna get out of their sweatpants. Who knows? I
Adam Walker:dunno, it doesn\'t work for me. I just find it just too overwhelming. We\'re
Jurate Lasiene:too old for this.
Adam Walker:Exactly. My, brain was never built that way, so No it doesn\'t work for me that way either.
Early Clinical Ops Planning
Adam Walker:Is there anything that we have not touched on today, YRA, that you\'d like to just elaborate further upon? Because I\'m aware that, your experiences are so broad and so vast. I want to do you justice on this podcast and give you the opportunity just to tell your truth.
And is there any particular area that you\'d like to just. Talk further about that we haven\'t touched on
Jurate Lasiene:now I\'m just thinking what I wish companies and clients that I work with would know that it\'s incredibly important to have early conversations with somebody that understands clinical trials. Clinical operations, even. Before you go into clinic, it\'s good to start thinking and having those conversations.
Jurate Lasiene:Half an hour will not cost you anything, and then upfront investment into somebody that understands where you need to go. We\'ll pay off many times over. I know how strapped for cash the little companies are, but the thing is. Help people like me, help you to save you money. So you are more successful.
Jurate Lasiene:And the reason is we need those ideas working. We need those drugs, technologies, you name it, getting to the patients. And I really am so saddened by smaller companies sabotaging their own success. \'cause they don\'t really know where it\'s best to invest. As their money that is so limited anyway and they end up actually wasting so much money, so much time and not surviving.
Jurate Lasiene:That\'s what I\'m deeply saddened about.
Adam Walker:So circling back to that original mission, it sounds like what you\'re saying is ultimately you can save people money and time and effort by a very small conversation at the earliest stage of clinical development that could ultimately play out. Much better for them, those biotechs and small pharma companies.
Jurate Lasiene:I believe so. I truly believe so. And then, just involving in the beginning of truly what it means to strategically go into clinic. Just planning. Take your time. It\'s really important to think about it because, by the time they have something working in a mouse or an idea, and they\'re like, okay, next clinical trial, oh, let\'s see, maybe a couple hundred dollars, then we\'re gonna be done. And you\'re like, they don\'t understand that they\'re stepping into now a million dollar game and then \$10 million game and then a hundred million dollar game. So they really need to plan accordingly. And those that been on, on this path, they know how important it\'s to plan and those who haven\'t, they should learn from.
Jurate Lasiene:Those who have.
Adam Walker:I think that\'s a really wonderful, refreshing lens to hear your insights from, and I appreciate you elaborating on that because perhaps that wasn\'t a question I was going to ask, but I\'m delighted that you managed to bring that in.
Quick Fire Round: Personal Insights and Advice
Adam Walker:At this point in the conversation, you, I like to finish with a quick fire round around.
Jurate Lasiene:Let\'s try,
Adam Walker:so I\'m wondering what is the one piece of advice you would give to your younger self?
Jurate Lasiene:That\'s so funny. I wrote on LinkedIn about it. Doesn\'t matter what I\'d say now, I would have never listened. I\'m an extremely stubborn person. I was a very stubborn, young person. But if I was able to listen, I would say don\'t be afraid to take risks.
Jurate Lasiene:What I learned about myself by changing my, throughout my career on making those pretty big changes that it\'s okay to take that first step and be in a limbo for a little bit. It\'s okay. That\'s what I would say. Don\'t be afraid to take a risk.
Adam Walker:Embrace the discomfort.
Jurate Lasiene:Yes, of not knowing. I think it\'s incredibly difficult when you don\'t know, will you know, will you survive?
Jurate Lasiene:Will you have money? Will you be satisfied? Will you do what if it\'s not safe? It\'s all right. It\'s actually all right. You will figure it out.
Adam Walker:What are the top three qualities you value most when building a team?
Jurate Lasiene:Number one. They have to care for what they do. If they\'re not present, if they don\'t care, it doesn\'t matter how much experience they have, it\'s simply not gonna be good enough.
Jurate Lasiene:It\'s just not. They have to care about what they do. Then they have to be able to make mistakes, be okay about it and learn from them. Extremely important. And third. Just be a nice person, simply nice person that we can talk to. We can hang out we can, laugh, we can cry. Just be a normal, nice person.
Adam Walker:I think that\'s wonderful. What is your favorite thing outside of work?
Jurate Lasiene:I love working. No, I really love a good meal. My goodness. I actually travel for restaurants. My family always complain that, our agenda is going through best restaurants that I can find in a country.
Adam Walker:Finally, what is your number one golden rule in life and in business?
Jurate Lasiene:Let\'s see if I can distill it down to a golden rule. I can\'t swear, right? So
Adam Walker:you can say whatever you want.
Jurate Lasiene:Like just don\'t be an asshole.
Adam Walker:That will serve you very well. That principle
Jurate Lasiene:that\'s true.
Adam Walker:I agree. You might work with one once, but you won\'t work with \'em twice and certainly not three times.
Jurate Lasiene:No.
Adam Walker:I agree.
Final Thoughts and Contact Information
Adam Walker:Yura, we\'ve had a wonderful conversation. We\'ve covered all manner of different aspects around your travels, your experiences across the world, your life from academia into what you now do in the rare disease space, and I really do appreciate the.
Adam Walker:Candidness with which you\'ve answered my questions and the conversation that we\'ve had, it\'s been a delight to just get to know you a little bit better over the course of this recording. For those of our audience who\'d like to reach out to you and make contact with you, what\'s the best way to make contact?
Jurate Lasiene:Yeah, LinkedIn is the easiest way and it\'s very easy to find me. You are lashes. Yeah. Just reach out DM. So that\'s the easiest
Adam Walker:and a further point I wanted to make. Just the connection that we have, that we discovered that we have together in the fact that my family actually come from the village.
Adam Walker:Where you now? Or the town where you now live City. I\'ll get it right in a minute.
Jurate Lasiene:Capital.
Adam Walker:Capital Vs. Oh my goodness me. I\'m hoping at some point to visit. That lovely city and continue the conversation with you. It\'s been a delight to get to know you, as I say URA this morning. And thank you for coming on Pharma Prescribed.
Jurate Lasiene:Thank you for having me. It\'s been a lot of fun.